Monday, September 26, 2011

So Much Better

Justin is doing so much better.  Friday dinner was the first meal he ate entirely in his own chair.  He still has episodes of clinginess and cries more than usual, but they are less often and not so long.  He is starting to recover some of his playfulness and silliness.  We were really missing that!

Justin also caught on to the idea that when he doesn't want to do something, he just says that his throat hurts and then he gets snuggles and he doesn't have to do it.  This usually involved eating.  He has gotten lazy and he likes for us to feed him.  So we put his plate down in front of him and he points to his throat and whimpers and then we set him on our laps and feed him.  He won't even hold his glass sometimes, the little stinker!  It also carries over to brushing his teeth and putting on his clothes.  Figure out how that makes your throat hurt!

He went to some therapy last week (not speech) and it turned out it was time for an OT reevaluation.  I was a little skeptical that it would go well, but Miss Caroline said she would try and see how he did and wait if it was too much.  Well, he did so well that she couldn't finish.  Remember, she goes down her list of activities and she gives him either full, partial, or no credit for doing the things she asks. When it's three in a row of no credit (he can't do it at all) then she stops the test.  He kept doing so well that he would be able to do one of the tasks and not skip three so she could stop.  He has a smattering of skills up to 41-44 months!  He's not even 42 months yet!  She has to finish the test this week and then score him.  She guesses he'll be in the mid to upper 30s by the time she figures it all out.  How cool is that??

I am so glad Justin is doing better when he's awake, but the nights have not settled down yet.  He is still not sleeping well and waking up very fussy.  We go back to the ENT the middle of October and we will see how he's doing by then.  He still has the appointment for the sleep study for the CPAP machine, but we might need to go back to the sleep clinic (doctor) for reevaluation now that his tonsils are out.  We'll see how he does when he is completely healed.  Really soon, I hope!

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