I am sorry for this being 3 days late, but no Internet and my attempts to keep Justin healthy make it difficult to post in a timely fashion.
Justin's appointment went very well. The doctor removed him from the lasix and we are down to only enalapril (bp med.) Yeah! He is back up to 11 pounds after losing more than a pound in the hospital. His bp was great and she said that she could only hear a minor regurgitation ("murmur"). It could be because of the meds. so that could change, but we are encouraged for now. The more minor or undetectable the murmur, the better the fix and the less likely additional surgery would be. Justin is having some sleep problems, which the doctor does attribute to the surgery. She said that some adult patients report some problems like depression, sleep problems, etc. so we will give it some time before we look into other possibilities. There is a small shift in his sternum, but again, not unexpected. His chest is wired together and it is difficult to realign it exactly. She said that she has seen much more dramatic shifts. She did say that we have to keep Justin clear of sickness for another 2 1/2 weeks because we are entering cold and flu season. That will bring us up to the 6 weeks post-surgery about which we were warned in the beginning. We have been cleared for another 6 weeks to return to the cardiologist, and then we will determine if another echo is required. Now we are looking forward to our return to genetics (10/30) the DS clinic (11/3) an catching up with our pediatrician (he is WAY behind in well-baby check-ups because of the delay with surgery). The brief reprieve in doctor visits has ended!
Other than that, we are good. Our freezer returned home last night so that makes the last thing to get our home back to normal. I apologize to those who were looking forward to pictures of the freezer move, but it was after dark and I (the photographer) was on child/baby duty. But the operation was flawless and the freezer is none the worse for wear after its displacement. Now I can assess the loss and plan for another MEAT DAY! (Coming soon!!!)
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