More Doctors

I said this was our doctor week, and we had two more appointments today.  Since Justin had a birthday we went to the pediatrician for a check up.  We talked a lot about gluten-free diets and Justin's eating/food absorption.  That's one thing I am a little concerned about.  Justin is never going to grow very tall or be very large.  He has our genes plus DS working against that, but I think he still should grow a little faster than he is growing now.  He eats a lot of food and I am not sure where it's all going!  The doctor agreed to do some blood work and check some of his vitamin levels to see how that is going.  Then we can check with a GI doctor is that is a problem.  She also mentioned about the celiac test.  She wanted to repeat it every two/three years.  I had always thought it was a one-time thing, you either had it or you didn't, but she said that it can develop later.  The only way to be sure is to test for a genetic disposition.  I thought that's what we were doing, but actually it's only a test for the antibodies that are formed from eating gluten.  So if you're on a gluten-free diet, the test won't do any good, because there won't be any antibodies!  And the genetic test is too expensive for insurance companies to cover.  Interesting information!  So we have to wait for the blood work to come back before the next step.

Then after therapy we went to the opthamologist.  Still has the myelinated nerve fibers in the left eye, but no change in his sight.  He still crosses his eyes some, and he is far sighted, like most young children.  She didn't recommend glasses yet, since his eye still seems to track and focus fine with the other eye covered.  She seemed a little more concerned about his vision, but without him being verbal enough to tell us he is having any trouble, she doesn't really feel it's necessary to address anything.  So, back in a year!